Advance HAE 1.0

The US Hereditary Angioedema Association, Inc. (HAEA) is a non-profit organization dedicated to serving patients with C1 Inhibitor Deficiency or Hereditary Angioedema. The organization has developed an app with the aim of enhancing the quality of life within the community and potentially contributing to saving lives.

• The app enables users to easily input health data, facilitating a better understanding of their medical condition and aiding healthcare professionals in delivering more effective treatment.
• By logging information about their episodes, users can visualize triggers, utilized treatments, and affected areas through the app's reports. The inclusion of a date range function enhances the app's utility in healthcare management.
• Users can share their data with healthcare providers, who can leverage this information to adjust treatment plans accordingly.
• In addition to aiding members of the US HAEA Scientific Registry, the app is beneficial for HAE patients interested in monitoring their condition.

The protection of user privacy and data confidentiality is a top priority. The Advance HAE app ensures that user data, including personal information, is collected and stored only with explicit consent. The organization adheres to principles of data minimization, safeguarding personal information solely for the purpose of delivering Advance HAE services. Notably, user information is never shared or sold to third parties.